Kate Cares

Letter to Parents

Resources of Support

Stillbirth Info
FAQs about Autopsy
Documents
Books
Web Sources
Organizations
Photographing your Baby

WEB SOURCES

Webmaster's note: If you find a bad link, or a new link that you think should be considered, please e-mail cboyden@clarian.org with the pertinent information. That way you will help us to keep other visitors to this page with the most up to date information.

INFANT LOSS/MISCARRIAGE SITES

A Trisomy 18 Journey, Abigail Grace Wilsford.
Story of a baby diagnosed with Trisomy 18 before birth who was carried to term and lived 5 days. Includes grief resources and memorial ideas.

Always Loved ~ Never Forgotten ~ Forever Missed~
Is actually a "Yahoo Group" that has recently added a newsletter For Grieving Parents. The Newsletters come out every Sunday Evening with Grieving or Memorial sites/links, Poems, and anything else that the members and visitors send in. The home website for the group is http://home.comcast.net/~alnf1

American SIDS Institute
Includes information on research, a memory page, links to other SIDS sites andbereavement services.

Angel Babies in Heaven, Pregnancy Loss Memorials
Offers hand painted stepping stone baby loss memorials as special keepsakes for bereaving parents. Site also offers parental support and their own personal story of their stillborn daughter.

Angel Teddy Bears Foundation.
The Foundation's purpose is to deliver teddy bears to hospitals which are in turn given to parents of stillborn children, miscarriages and neonatal loss. Along with these teddy bears is a card containing a sympathy message and the website address.

Angel Whispers
Angel Whispers offers a variety of services for coping with baby loss such as E-mail Support, Monthly Support Group Meeting, Subsequent Pregnancy Support Group Meeting, a Quarterly Newsletter and a Resource Library among other things.

A Heartbreaking Choice
For parents who have interrupted a wanted pregnancy following poor prenatal diagnosis. Includes resource list, remembrance garden, poetry, other educational information. You can also register to be included in their chat room. Also includes over 40 local support groups for parents who have interrupted a pregnancy.

Angel Whispers.
A non-profit group for families who have lost a baby during pregnancy or shortly after birth, as well as those who are expecting again. We provide email support, a quarterly e-newsletter, care packages, birth certificates and support groups.

Baby Angel Pics
The BabyAngelPics Project has been created to donate photo retouching resources to the parents and families of a stillborn baby. Through this free service, our skilled digital artists work with a digital copy of your original, eliminating medical equipment, removing unsightly marks and even replacing the background if desired. Mothers can scan their photos and upload them to us or have a participating retail partner scan them and upload them to us.

Babyloss
Information, support, forums, stories and dedications for women and their partners who have experienced the devastating loss of a baby.

Bears for Bereaved Mommies
In addition to the valuable information and resources, find out about how you can participate in the bears for mommies program in your area as well as the "ribbon campaign".

Bereaved Families of Ontario
Updated regularly, and includes over 300 links to other web sites on the topic of dealing with all types of grief. And, it's frequently updated.

Bereaved Parents of the USA
Lists chapter locations and information for the newly bereaved, and now has all of their newsletters online back to the fall of 1999.

Bonnie Babes Foundation
A nonprofit organization in Australia providing counseling services and training.

Born Angels
Is a site for grieving parents who have lost a baby at any stage of their pregnancy; ectopic pregnancy, miscarriage, or stillbirth...and for their family and friends.

Born Still
offers email support, poetry, links, and free greeting cards.

Carrying To Term Pages
Is an online how-to guide for carrying a pregnancy to term after diagnosis of a condition fatal to the baby. The site includes birth plans for terminally ill babies, memorial ideas, funeral planning, and emotional support.

The Center for Infant & Child Loss
Works with Maryland families and communities facing the sudden unexpected death of their infant or child as they learn to live with their loss. The Center is committed to increasing the understanding of Sudden Infant Death Syndrome (SIDS) and other child deaths, risk reduction practices, grief, and compassionate intervention.

Center for Loss in Multiple Births
(CLIMB) now has a webpage introducing their services. You can e-mail them to receive a free copy of their newsletter.

Centering Corporation
I s one of the largest distributors of all grief materials, including infant loss. They now offer their catalog of materials online.

Children Are A Gift Foundation.
This wonderful website tells you about the work of this foundation in Texas USA. If nothing else, take a virtual photo tour of the fantastic and impressive Children's Park that they developed to remember infants. We are most impressed!

Compassion Books,
7036 State Hwy. 80 South, Burnsville, NC 28714; 828-675-5909; toll free 1-800-970-4220. Over 400 resources to help children and adults through serious illness, death, loss, grief and bereavement. Print catalog available by request.

Compassionate Friends
Provides locations of all of their 575chapters in the U.S. and links to at least 29 different chapter homepages.

Coping with the Emotional Aspects of Pregnancy Loss
An excellent primary guide for parents who have recently experienced the death of a child through miscarriage, stillbirth or other perinatal loss.

Ectopic Pregnancy
A compassionate information resource compiling facts, stories, poetry and other items of interest to those who have experienced an ectopic pregnancy.

Elizabeth A. Pector, M.D.,
A page of poetry and prose focusing on multiple birth loss. From here you can also connect to her multiple birth loss resources page.

First Candle
ìFirst Candle promotes safe pregnancies and the survival of babies through the first years of life. With programs of research, education and advocacy, we are working toward a future where all babies are provided the best possible chance to reach not only their first birthday, but many happy birthdays beyond. Until we reach this goal, we remain committed to providing compassionate grief support to all those affected by the death of a baby.î
24-hour toll-free crisis hotline: 1-800-221-7437
Bilingual Crisis Counselors available 24 hours a day

Glory Babies
Of the Children are a Gift Foundation offers personal stories, articles, a newsletter, prayers, poems, memorials, resources & links.

GriefNet.org
GriefNet.org is an Internet community of persons dealing with grief, death, and major loss, and have almost 50 e-mail support groups. A companion site, KIDSAID.com, provides a venue for kids and their parents to find information and ask questions. GriefNet is directed by Cendra Lynn, Ph.D., a clinical psychologist and certified traumatologist who works in Ann Arbor, Michigan, USA.

Grieving for Babies
Grieving for Babies guides families and professionals towards understanding grief caused by the death of a baby during pregnancy, at birth, and after the first few months of life.

HAND (Helping After Neontal Death)
Founded in 1981 to help parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth. It is a resource network of parents, professionals, and supportive volunteers that offers a variety of services throughout Northern California and the Central Valley.

HAND of the Peninsula
This website by a local chapter of HAND (Helping After Neonatal Death) offers information on their resources, their programs, their support groups. Includes "telephone crisis" support.

Hannah's Prayer
Christian emphasis, including infertility or the loss of a child at any time from conception through early infancy. Info on their network of local care/support chapters through the US, "live chat" room, and a pen pal connection area. They also have a newsletter, Hannah To Hannah.

Haven of Hope and Healing, Inc.
A nonprofit organization committed to providing mental, emotional, spiritual, and educational support to those who have experienced the loss of a baby through miscarriage, stillbirth or infant death. We are a nondenominational organization that helps parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth.

H.E.A.R.T.S. (Helping Empty Arms Recover Through Sharing)
A Baby Loss Support Program for anyone who has been touched by the loss of a baby during Pregnancy or shortly after Birth. One-to-One Support, Group Meetings, Resource Library, Monthly Newsletter, Website and a Pregnancy After Loss Group. Created in 1996 by two mothers who discovered a lack of support in their own community after the losses of their precious babies. Located in Sherwood Park, Alberta, Canada but open to all.

Heavenly Angels
helps bereaved parents all over the world by offering a safe Haven to share the loss of their angels. They believe in programs suitable for each different bereaved parent, activities that continue a healthy grieving process, and Memorials like online Memorials along with actual Memorial Quilts.

Heavenly Angels In Need.
A woman's personal ministry as led to a help site with all kinds of ways for you to help. Of special note are her free patterns for knitting, crochet, sewing to make things like burial gowns, blankets, etc.

Honored Babies
For those who have experienced miscarriage, stillbirth, neonatal death, and/or pregnancy termination. You'll find an online Memorial, Support Email Lists (separate lists for Mothers and Grandmothers), a comprehensive Resource Center, and Keepsakes.

Infants Remembered In Silence, Inc.
Dedicated to offering support, education and resources to parents, families, friends and professionals on the death of a child in early pregnancy (miscarriage, ectopic pregnancy, molar pregnancy, etc) or from stillbirth, premature birth, neo-natal death, birth defects, sudden infant death syndrome (SIDS), illness, accidents, and all other types of infant & early childhood death.

LaBelle Dame
After experiencing the loss of her second child, this jeweler designed pendants and a bracelet for mothers to remember their angel babies.

Little Ones Lost
Includes information on miscarriage, stillbirth, ectopic pregnancy and infertility. Includes chat and guestbook as well as links section.

Loss in a Multiple Pregnancy
Providing credible twin loss resources for families and medical professionals since 1992.

M.E.N.D.
Support with a Christian emphasis for those families whose baby has died, or a subsequent pregnancy after a loss. Links to Bereaved Family Web Pages, other resources, and info about their newsletter and program.

M.I.S.S. (Mothers In Support and Sympathy)
A grass roots organization dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations offered. List of Do's and Don'ts to help bereaved parents, and a listing of groups and resources in Arizona.

Maitland Support Group Miscarriage-Stillbirth & Neo-Natal Deaths in NSW
Australia presents this website Personal Story with resources, Candle of Light Room, Listen to Me, Recommended Reading, Coping with Holidays & Anniversaries Organization & Internet Support, Wall Of Hope, Understanding Grief, and Resolutions for Bereaved Parents.

Maternal Grief page of obgyn.net
Devoted to comfort the sorrow of hearts grieving the loss of babies through infertility, miscarriage, stillbirth, neonatal death, and sudden infant death, and to offer ongoing support.

Miscarriage Association of the United Kingdom
Offers information(including several leaflets for sale), support services, information on upcoming events and links

Miscarriage Information Page
Gives basic information for anyone who has suffered a miscarriage.

Miscarriage Support and Information Resources
An attractive and rich source of information for those looking for assistance after a miscarriage.

Miscarriage Support Groups in NZ
Tips for coping with miscarriage, contact information for Miscarriage Support Groups in New Zealand, links to other Internet resources and access to our online support forum soc.support.pregnancy.loss.

Missing Grace
A personal web age, but so much more, with information on medical issues, proactive prenatal care, how to cope, etc.

Missing Grace Organization
(Grieve Restore Arise Commemorate Educate) The Missing GRACE Organization serves to help families on their journey through pregnancy and infant loss, infertility and adoption. We provide support and resources to aid individuals as they Grieve, Restore, Arise, Commemorate and Educate. Further, we commit to make available educational opportunities that will help bring about awareness and prevention of stillbirth.

Missing GRACE support resources include: Membership with quarterly newsletter and monthly conference calls, active support group meetings, online support, annual conferences, information about stillbirth prevention and awareness, education courses for medical professionals and prenatal care classes for moms during a subsequent pregnancy after loss, Crisis Care for Couples in the hours and days after a baby has died, photo retouching, GRACE Memory Albums and up-to-date listings of national and international resources. We also offer a keynote speaker, drama team and dance group that can be commissioned for events such as conferences and seminars with a focus on pregnancy/infant loss and infertility.

Multiple Birth Prenatal Education & Bereavement Support
This Web Site offers information regarding multiple births. It includes pregnancy and post-natal information and, from the point of view of new parents, it attempts to address some of your questions and concerns. Although a joyous time, there are sometimes risks in multiple births. Hence this Web Site also offers bereavement support for parents who have lost one, more or all of their multiple birth children during pregnancy or in infancy.

My Forever Child
Artisan handcrafted and personalized jewelry and keepsakes to comfort those touched by the loss of a Child

National SIDS/Infant Death Resource Center (NSRC)
Provides information services and technical assistance on SIDS. If you have Acrobat Reader you can also download The Death of a Child, The Grief of the Parents: A Lifetime Journey.

National Stillbirth Society
Includes membership information, volunteer opportunities, legislative initiatives, state director info, and more.

Now I Lay Me Down To Sleep
A hugely important resource of dozens photographers around the United States who provide photographic services for parents experiencing an infant loss, (as early as 20 weeks gestation). At your request, they will have a professional photographer come to your hospital location for a private and sensitive photography session. You will be provided with a DVD of your baby set to a meaningful melody and the CD file of all photographs taken that you can personally reproduce up to a 5X7 size. (Please note: Each photographers offer varies location to location. Check listing photographer for what he/she can provide.)

Operation Angel
A Miscarriage and Child Loss Ministry includes ideas on how you can memorialize your baby, poetry, links, and info on how you can participate in their Memorial projects.

Pain, Heartache and Hope Website
By the author of a book by the same title, where real men and women coping with miscarriage, infertility, stillbirth, and losing a child after birth share their stories. Site includes a Memorial Page and samples of stories from the book. Also a link to an email support group.

Parent Soup
Offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine. Includes sites for abortion loss, miscarriage, and stillbirth among its huge offerings.

Parents of Multiples Forever
A unique site providing support and resources for parents who experience the loss of one or some of their multiple birth children, either during pregnancy or anytime after birth, including childhood.

Perinatal Bereavement Services Of Ontario
PBSO provides a variety of unique support services that have been tailored specifically to meet the special needs of perinatally bereaved families. The organization has also grown to include developing and implementing educational training seminars for health care professionals, caregivers, clergy and funeral directors on how to best support these families.

Perinatal Loss
Grief Watch offers a full line of products and gift items, from urns to albums, many of which are handcrafted to make them all the more special as remembrances.

PreemiePatterns
What a great site to link up with crocheted, knit and sewing patterns for preemie burial pouches and burial gowns. Use the patterns to create these much desired items for your local hospital as a support or as a memorial to your own angel.

Pregnancy and Infant Loss Network
(an extension of the SIDS Network, Inc.) has a home page which includes guest book, information, and info on joining a Pregnancy and Infant Loss discussion group, and a SIDS discussion group.

Pregnancy Loss Resources. Includes important local resources for those living in the Bay Area California area, as well as a good information sheet on the kinds of things to think about in the hours, days and weeks that follow a loss.

Quilt of Memories
Add your child to this memorial site.

RainbowMaker
A "Healing Center" founded after the loss of their first-born son Daniel Ethan. Includes helpful articles, angel pins, book reviews, and much more.

Rainbows Down Under
A Trisomy 18 & 13 Resource. A site from Australia which includes info, information on sharing info, links, a Trisomy Listserv, a Trisomy 13, Trisomy 14, Trisomy 18 message boards, and much more.

Remembering Our Babies
Site devoted to promoting "Pregnancy and Infant Loss Remembrance Day". Tells you how you can get involved in making your country, your state, your community, your household involved in this important remembrance event. See if YOUR state has agreed to proclaim Remembrance Day... make sure you click to "sign the petition."

SANDS Australia-Tasmania (Stillbirth and Neonatal Death Support)
SANDS offers support to all bereaved parents and relatives who have suffered the death of a baby anytime from conception through to 28 days after birth - this includes, miscarriage, neonatal death, stillbirth, ectopic pregnancy and genetic/medically advised termination. Our support to bereaved parents does not cut off at 28 days after birth, bereaved parents whose baby dies later in infancy are also welcome to SANDS.

SANDS Australia-Queensland (Stillbirth and Neonatal Death Support)
SANDS offers support to all bereaved parents and relatives who have suffered the death of a baby anytime from conception through to 28 days after birth - this includes, miscarriage, neonatal death, stillbirth, ectopic pregnancy and genetic/medically advised termination. Our support to bereaved parents does not cut off at 28 days after birth, bereaved parents whose baby dies later in infancy are also welcome to SANDS.

SANDS of South Australia
SANDS offers support to all bereaved parents and relatives who have suffered the death of a baby anytime from conception through to 28 days after birth - this includes, miscarriage, neonatal death, stillbirth, ectopic pregnancy and genetic/medically advised termination. Our support to bereaved parents does not cut off at 28 days after birth, bereaved parents whose baby dies later in infancy are also welcome to SANDS.

S.A.N.D.S. (SO) (Stillbirth And Neonatal Death Support)
Site on the SANDS resources in South Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth. This site includes book reviews, several issues of their newsletter, events, info on the different reactions between men and women, and a checklist for friends and relatives.

S.A.N.D.S. (VIC) (Stillbirth And Neonatal Death Support)
Site on the SANDS resources in Victoria Australia. SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth.

S.H.A.R.E. Atlanta
Has developed a very nice site of resources, stories of sharing, a memorial garden, links and "Ways to Help Heal." Also includes info on Atlanta-area events of interest. Make sure you check out their section on "Descriptions of Medical Information"--it is EXCELLENT!

S.H.A.R.E.
Their national office is online with information on the valuable services they offer caregivers and parents whose child has died. Site includes list of upcoming conferences, links, and resources (books, etc.) that Share offers.

Sharing Parents of Sacramento
An infant loss support group located in Northern California, affiliated with Share. Includes their newsletter online, as well as an events calendar and information on their services.

S.I.D.S. Network
Offers support to those who have been touched by SIDS, links, and a mailing list. The site has really expanded to include an entire series of FAQs as well as an extensive table of contents.

S.I.D.S. of PENNSYLVANIA
Contains information regarding support, education and research. It also addresses the "Cribs for Kids" campaign, which has been credited with the drop in infant mortality rates in southwestern Pennsylvania, through the donation of over 2,500 new cribs, mattresses and educational materials to low-income families in the Pittsburgh area.

S.I.D.S.
The Smallest Angels Memorial Wall lists hundreds of babies who died from SIDS and invites other SIDS parents to do likewise.

Silent Grief
This is a website that is promoting 2 books and an audio CD... but most important there is a very large number of articles, stories, and a chat board with over 1000 members.

SPALS (Subsequent Pregnancy After Loss Support)
SPALS is an email-based discussion group providing self-help support for subsequent pregnancy after a loss.

St Paul's Tintagel Miscarriage and Infant Loss Memorial Book
A Catholic miscarriage support group. Aims of the group include an annual mass for all miscarried babies at the church of St Paul the Apostle, Tintagel, Cornwall; and a memorial book kept in church for all miscarried babies and their families regardless of religious beliefs. Anyone wishing to include their babies and their families is welcome to email miscarriage@rosenthalenglish.worldonline.co.uk or go to http://beehive.thisiscornwall.co.uk/tintagelcatholic - open the miscarriage support page and fill in the online form.

Stepping Stones
Offers Christian based support, encouragement and information for couples facing infertility or pregnancy loss.

Still Born And Still Loved
A small yahoo group for all mothers who have lost a baby due to stillbirth.

Stillborn but Welcome
The Short Life of Paul Michael, by Jörg and Mary Barth.

Storknet's Pregnancy/Infant Loss Cubby
A special site of information and support for those who have experienced infant loss. Currently moderated by grief author Maribeth Doerr.

Sudden Infant Death Syndrome (SIDS) Alliance
A national, non-profit, voluntary health organization dedicated to the support of SIDS families, education and research. See the latest research and news regarding SIDS, as well as events in the US focusing on the issue.

The Tears Foundation
Helps needy families in Pierce County, Washington state USA, with the cost of their baby's funeral expenses.

Tom Golden's Page on Crisis, Grief and Healing
A web site focusing on Men and Women's Differing Grieving Styles. An incredible list of links!

Touching Souls, Healing with Bereavement Photography
Learn about this amazing project (and hopefully someday a book) by photographer Todd Hochberg. Go to "See" section to witness some of this amazing photographic work.

Waiting With Love
For parents who choose to continue a pregnancy after learning their unborn baby will die before or shortly after birth and for parents who learn their newborn will die soon. Site includes parent letters, resources, and sample birth plans.

We will hold you in Heaven Support Group
An online "Yahoo groups" support group for anyone who has lost an angel due to SIDS/OID, miscarriage, ectopic pregnancy, or early child death and is looking to give and receive support.

Wintergreen Press
The website of well-known perinatal loss speaker and author Sherokee Isle. The site is still fairly new, but it promises to hold a lot of information in the future, including "action items" and "resources and how-tos."

Wisconsin Stillbirth Service Program
A large site which includes many links, information on stillbirth, an on-line newsletter and educational resources. Excellent.

PERSONAL INFANT LOSS/MISCARRIAGE REMEMBRANCE SITES

Listing of sites does not imply an endorsement by Kate Cares and is included to provide sources of useful information for bereaved families. These sites are primarily adopted from www.compassionatefriends.org

C. Elizabeth Carney's personal site
Related to her miscarriage and her "12 Truths". Also includes "A Mother's Prayer, Affirmation After Miscarriage."

For the Love of Riley
Another "personal web page" that is well worth a visit.

Heavenly Treasures
Here you will find a very touching story and poetry written by Amy Michelle Wilson which tells how she and her family have managed to survive the loss of three of their four boys, and one of their twin girls, over a thirteen-year period of time—each dying just days after birth, and each death caused by an extremely rare genetic disorder known as NKH.

Love Never Dies
A Tribute to Geordi is a personal site dedicated to an 18-month old who died after surgery to correct a congenital heart defect. Includes support information at the very bottom of the page, including how her parents coped with her death. From this site you can link to the "Congenital Heart Disease Ring."

Michaela's Hope
A web site dedicated in memory of our precious angel, Michaela Hope Bucher, and all babies with Anencephaly. A personal page telling the story of her birth, her journey home, and her death--a short life filled with love from her family.

RELATED TOPICS

About.com's Guide to Infertility is an extensive site focusing on all issues related to infertility, including Pregnancy Loss and A Pregnancy After Infertility or Loss.

Aicardi Syndrome web page. Web site for the Aicardi Syndrome Foundation with information, stories, and links.

Always Loved, Never Forgotten. Newsletter/Support group for anyone who has ever lost a child of any age.

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), includes news, information on meetings, library/review lists, information on research, and will soon be premiering their discussion group.

American Psychiatric Association site is primarily for its professional members rather than for the public.

American Psychological Association web site includes a large section for the public dealing with many topics of interest, including depression.

APERT Syndrome. Information site.

Ask NOAH About: Pregnancy and Childbirth Problems & Risks. If you can't find it on this list you have a rare question indeed! I counted over 300 categories/links on their list!

At Health, Inc. includes excellent brief overviews of such mental health issues as bereavement, depression, stress and anxiety. Also includes names of mental health professionals around the United States who deal with such issues.

BabySteps is a resource center for parents and children who have lost a child or sibling of any age, and also provide a place of comfort. You may experience trouble loading the front page, but once inside you will find a Sharing Room (one for kids, one for adults, and one for professionals), a brand new remembrance section (for children of any age), and a wonderful section with short reviews of over 65 books related to grief and loss of a child. (Note: if all else fails and you can't get through the main door, try

http://www.babysteps.com/rrmainframe.html, which is the resource page.)

Birth Defects Research for Children. Provide comprehensive fact sheets about birth defects, as well as other information. Also provide parent matching opportunities and information resources, including books and links or participate in the National Birth Defect Registry.

Bryan's Kidney Page A page about pre-birth kidney failure and options other than termination. This page is a personal story but it is so much more with an incredible amount of important links for all kinds of special needs.

Cerebral Palsy. A wonderful overview of cerebral palsy in an article titled "When Your Child Has Cerebral Palsy" on the KidsHealth.org website.

Cherubs is the official site of The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support. Extensive site. Lots of information. Fun graphics. Bulletin boards and program information. Information also available in Spanish, French, Portuguese, Italian, and German.

Children's Disability List of Lists is a current, annotated list of mailing lists for families of children with disabilities and special needs...and there are hundreds covered!

Cleft Palate Foundation. American Cleft Palate-Craniofacial Association/Cleft Palate Foundation site. Information sides for both parents and for caregivers/health professionals. Also a site in Spanish.

Complications and Medical Problems in Pregnancy. Over 50 different categories to choose from all the way from "Caffeine can cause miscarriage" to "Fibroid tumors" to "I want a baby but I'm epileptic". Check it out...

Complications of Pregnancy. Quite extensive pregnancy site of Robin Elise Weiss, Childbirth Educator (and who has had seven pregnancy losses) which includes this section on pregnancy complications.

Crouzon Support Network. An organization for individuals and families who are dealing with Crouzon Syndrome and other craniofacial anomalies.

Cystic Fibrosis Foundation, Offers extensive information and referrals to local chapters, support groups, medical information and a newsletter.

Drug InformationDetails of prescription and over-the-counter medications and any associated drug side effects - also, features updated information concerning drug recalls, medication approvals, and current developments in the medical field.

Dougy Center, The National Center for Grieving Children and Families, provides support and training locally (Portland OR), nationally and internationally to individuals and organizations seeking to assist children and teens in grief.

Down's Syndrome: For Parents Includes questions and answers, reading list, stories, a forum, web rings and list of resources.

Ectopic Pregnancy Trust. Find out about the symptoms of an ectopic pregnancy and how they happen and read our answers to your most frequently asked questions. Read about chlamydia, our diagnosis guidelines and our recommended books and other websites.

Emergency Child Birth. (Steps to Take In an Emergency Child Birth Situation). Here are some of the basics in a step by step format on what to do in various emergency birth situations... when not to transport a mother; what to do if the baby is delivering; what to do with the placenta; should you cut the cord?. Also talks about what to do in post and pre delivery emergencies such as multiple birth, umbilical cord accidents; wedged shoulders, breech birth; and excessive bleeding.

Esophageal Atresia Index. The purpose of the web site is to provide information to the families of babies suffering from
Esophageal Atresia and Tracheoesophageal Fistula, as well as to health care providers who would like to review their treatment.

Family Village is a "global community of disability-related resources."

Fertile Thoughts is a site focusing on infertility, surrogacy, pregnancy and adoption.

Fernside is a beautiful site for grieving children and their families: "we know that the grieving child has the capacity to rebuild, so we gently encourage sharing of stories, feelings and memories with trusted friends, honoring each one's search for a new beginning." Includes a kids area, grownup area, and resources.

Fetal Alcohol Syndrome. Some straight talk facts about Fetal Alcohol Syndrome--dispelling the myths.

Fetal Treatment Center at UCSF Children's Hospital is a world leader in diagnosing and treating birth defects, using advanced therapies including fetal surgery. They have an extensive website including information on prenatal diagnosis.

Food and Drug Administration (FDA)
The U.S. Food and Drug Administration (FDA) is responsible for protecting public health by assuring the safety and security of drugs, vaccines, medical devices and biological products, our nationís food supply, cosmetics, and products that emit radiation. The web site helps you get accurate, science-based information you need to use medicines and foods to improve your health.

Genetic Alliance includes a Directory of National Genetic Voluntary Organizations (list of over 300 support groups).

God's Little Ones. This artist creates incredibly lifelike dolls for people to remember their babies. The dolls range in gestational age from 6 weeks to full-term. The artist is a mother of a miscarried baby born at 8 weeks gestation, and preemie twins born 8weeks early. The portrait dolls on this site were all made at the request of the parents of these real children. A couple warnings: first the site may be very slow to download as it is full of pictures and graphics. Secondly, this site is decidedly pro-life. And, thirdly, the images are very real and life-like (made from resin) and may be very intense for persons who have lost their infants through miscarriage or stillbirth.

Grief Net. A "general" grief site which includes: library; bulletin board; resource center; links to emergency services and a shopping mall.

Grief Resources. A site which offers the general grief resources of several companies. The video / audio offerings look especially promising, and there are cards as well as several book/booklets on specific grief topics.

Group B Strep Association

HER Foundation is a non-profit organization dedicated to hyperemesis gravidarum (HG) research and education and to those suffering from HG or those who have survived it.

High Risk Situations and Complications in Pregnancy. A sub-section of the OnLineBirthCenter, thereare links here to many kinds of high risk situations including: Screening & Testing; Violence & Sexual Abuse; HIV and AIDS; Group B Strep; Preeclampsia; Drugs, Alcohol, and Pregnancy; C-Section and VBAC, etc.

IVF.com Endometriosis Homepage. A wealth of information on infertily, in vitro fertilization, endometriosis. Includes chatline, guestbook, FAQs, bookstore.

INCIID The International Council on Infertility Information Dissemination. If you are seeking information on infertility, this is a great place to start since it is the largest (they claim over 4 million hits per month). Includes fact sheets, several bulletin boards, links, and a directory of physicians, therapists and attorneys. Includes experts who are online at specified times to answer consumer inquiries.

Infertility Blues. A Mind/Body Approach to Help Women Cope with Infertility and Enhance Fertility.

Journey of the Hearts, a Healing Place in Cyberspace is an all-encompassing site focused on general grief. It's sections on loss, coping, and on how to help someone else who is grieving are well worth a visit to the site. It also has a very extensive resource section on medical information links on a huge range of topics.

Julia's Journey with Spina Bifida. Includes personal stories, information, and links on Spina Bifida and Hydrocephalus.

Labor of Love Pregnancy and Parenting Search Engine is a search engine devoted specifically to pregnancy-related issues and includes links for High Risk, Loss Support and Miscarriage among many others. Includes large book lists on topics of interest and information articles, i.e. ectopic pregnancy.

Living With Heart is for people who are working to put their lives back together after the chaos of trauma; who want to move past the grief trauma causes and rebuild a life of meaning and joy. This is a place for people to come together to find hope and encouragement, to share knowledge and wisdom, and to learn.

Living with Trisomy 13. This site focuses on bringing the families of beautiful Trisomy 13 (Patau Syndrome) children together. Sharing their stories of living and growing in love in the challenges of raising a Trisomy 13 child. It is our wish that the photos will bring great HOPE, Support and inspire those visiting the site.

Loss On-Line Support is an ezine published monthly by Koto Press, who also publishes several loss books. The have the loss ezine issues available for you to peruse. And, if you click on the "Mrs. Duck Project" you will be treated to the story in a Flash version and in an html version as well as learn how to become a participant in the Mrs. Duck Project.

Male Infertility MDs. A index site to help you find a male infertility specialist closest to you. Also includes some basic info on male infertility.

March of Dimes Birth Defects Foundation, Offers information, referrals and education on many prenatal, pregnancy and child related issues to improve the health of babies by preventing birth defects and infant mortality. Local chapters throughout the country.

Monoamniotic Monochorionic Support Site. The web site for expectant and experienced parents of monoamniotic twins, formed by experienced and expectant parents reaching out to each other to help support each other through the difficult times. Includes great explanation of monoamniotic twins, as well as lots of links to important medical as well as lots of support sites.

Multiple Birth Prenatal Education & Bereavement Support. This Web Site offers information regarding multiple births. It includes pregnancy and post-natal information and, from the point of view of new parents, it attempts to address some of your questions and concerns. Although a joyous time, there are sometimes risks in multiple births. Hence this Web Site also offers bereavement support for parents who have lost one, more or all of their multiple birth children during pregnancy or in infancy.

Multiple Birth Resources Updates, information on video education and on MBR classes.

MUMS National Parent-to-Parent Network is a non-profit support organization for families of children with rare disorders or medical conditions and also for service providers who assist these families. Parents are matched or sent a list of other parents whose children have the same or similar diagnosis ($5.00). MUMS' database has over 18,000 families registered from 54 countries and represents over 3000 rare or not so rare disorders or medical conditions.

National Adoption Center A non-profit organization whose mission is to expand adoption opportunities throughout the United States for children with special needs and those from minority cultures.

National Information Center for Children and Youth With Disabilities is an information clearinghouse that provides information on disabilities and disability-related issues. Children and youth with disabilities are a special focus.

National Institute for Trauma and Loss in Children (TLC) Parents Trauma Resource Center. TLC's Parents Trauma Resource Center is an excellent site for parents and caregivers to easily find detailed information about grief and trauma as well as ways to help themselves and their children.

OB Focus. Well here is a site that every hospital should consider building. Devoted to prenatal diagnosis, management of medical complications of pregnancy and management of complicated pregnancy they have built a most incredible site of information and helpful tools to pregnant parents. Includes everything from naming and birthstones all the way to explanations of blighted ovum, placenta accreta, RH disease, etc., etc. Wonderful work San Gabriel Valley Perinatal!!

Parent Soup offers discussion boards as well as weekly live chats on almost every pregnancy and parenting issue you could imagine. Includes sites for abortion loss, miscarriage, and stillbirth among its huge offerings.

Paternity Angel. Someone HAS done an entire (and complete) website for MEN and pregnancy! If your significant other is pregnant you have got to bookmark this page!

Polycystic Ovarian Syndrome Association. The website for the POSA, a national nonprofit organization operated by women with Polycystic Ovary Syndrome. Includes information on the syndrome, a quiz help narrow in on symptoms, email lists/chats/discussion boards, and info on regional and national conferences regarding POS.

Postpartum Support International (PSI) ìFounded in 1987 to eliminate denial and ignorance of emotional health related to childbirth. Includes resources for family members and health professionals. Offers free phone sessions, held every Wednesday for all callers and on Mondays for men. Talk with a PSI PPD expert about resources, symptoms, options and general information about perinatal mood disorders from the privacy of your own phone. No need to pre-register or give your name. These free Sessions are informational only and open to anyone with questions and concerns about themselves, a loved one, friend or family member.î Includes a bookstore on the site.

Potter's Syndrome. A website devoted to Potter's Syndrome (renal agenesis), one of several serious or fatal kidney abnormalities. In Potter's (or Potter) syndrome the baby's kidneys do not develop in the first few weeks of life in the womb. They have an online support forum is http://forums.delphiforums.com/potterssyndrome/start

PPD Support Group. Includes information, stories, forum, chat group, support info, contact information, and online support for those suffering from postpartum mood disorders.

Preeclampsia Foundation. A non profit organization dedicated to funding research, raising public awareness, and providing support and education for those whose lives have been touched by preeclampsia and other hypertensive disorders of pregnancy.

Pre-eclampsia site. Information about Pre-eclampsia, Eclampsia and HELLP Syndrome. This is a very personal site, with many true stories, pregnancy diaries, special babies, a very supportive email discussion group and much more including memorials for losses due to pre-eclampsia, eclampsia or HELLP Syndrome as well as the stories of those babies who have beaten these conditions. Site based in the United Kingdom

The Pregnancy Institute, Inc.,is a non-profit organization created to study normal pregnancies. It is designed to promote the likelihood of healthier pregnancies resulting in well monitored, full-term live births. Has strong emphasis on Umbilical Cord accidents and currently has at least 5 Case Studies going on.

PregnancyMD is a site which offers both free advice as well as paid fee services for those who are struggling with issues of infertility. Includes fact sheets, support groups, links page, a list of worldwide fertility centers, and free newsletter.

Save Babies Through Screening Foundation is a national nonprofit public charity run by volunteers. Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening.

Sidelines is a network of support groups around the US for women with complicated and "high-risk" pregnancies.

SOFT. S.O.F.T. (Support Organization for Trisomy 18, 13 and Related Disorders) is a nonprofit volunteer organization offeringsupport for parents who have had a child with a chromesome disorder (such as Trisomy), and education to familes and professionals interested in the care of these children

Stepping Stones offers Christian based support, encouragement and information for couples facing infertility or pregnancy loss.

Tapestry Books commercial site on adoption and infertility with hundreds of available titles and resources.

TAR Syndrome, Alex’s website. A personal website help meant to help anyone confronted with TAR's Syndrome and at the same time find support for web owner's own son.

Treacher Collins Syndrome. The wonderful personal reflections and yet highly informative web site on Treacher Collins Syndrome, a genetic craniofacial birth defect.

Triplet Connection is a nonprofit network of caring and sharing for multiple-birth families. They provide information to families expecting triplets, quadruplets or more as well as encouragement, resources and networking opportunities for families who are parents of larger multiples. Includes a chat room, topics of interest, links, products, and information on their convention, among other things.

Trisomy 18 Support Foundation, Families Caring for Families, is a support group for parents pregnant with, parenting, or grieving the loss of a child with trisomy 18.

Willowgreen.com. Especially check out their free e-cards for "grief" and for "transition"! They are absolutely wonderful.... Also includes readings on grief, illness, and transition.

Women's SurgeryGroup. Providing extensive information on a host of women's issues, including endometriosis, infertility, eptopic pregnancy, fibroids, adhesions, ovarian cysts and tumors, etc.

Zellweger Syndrome